Eva Luise and Horst Köhler Foundation
for People with Rare Diseases

We encourage research 
ensuring that medical progress reaches everyone

DID YOU KNOW THAT
... experts estimate there are up to 10,000 rare diseases?
The Eva Luise and Horst Köhler Foundation
Rare diseases primarily affect the weakest in our society. Every year, at least 1,000 children die of a rare disease in Germany. Rare is only the respective clinical picture: In Germany alone, up to 5 million people are affected by one of these usually severe chronic diseases. Due to a lack of research, there is a lack of effective treatment approaches and medications.
The Eva Luise and Horst Köhler Foundation wants to change this through targeted research funding, networking and public relations.

We support research into rare diseases and invest specifically in the necessary structures. As the initiator of the Alliance4Rare, the Eva Luise and Horst Köhler Foundation, together with partners from research and civil society, is shaping a future model for pediatric research in Germany.

We act today, because people with rare diseases urgently need the 'medicine of tomorrow'. Support us - ensuring that medical progress reaches everyone!
Rare Diseases
Why we help
Rare are many. Our efforts give those affected hope for a healthier future and ultimately benefit everyone. Because research into rare diseases can also revolutionize the "medicine of tomorrow".
Our mission
1. Key Fact
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2. Key Fact
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3. Key Fact
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Our network
Newsletter subscription
Our free newsletter informs you four times a year about current calls for proposals, events and projects on rare diseases.