Rare Disease Symposia

Knowledge transfer and interdisciplinary cooperation

Wissenstransfer und
interdisziplinäre
Zusammenarbeit

Interdisciplinary collaboration between clinicians and researchers is essential to accelerate research and therapy development for rare diseases.

Our Rare Disease Symposia drive knowledge transfer and active networking among key stakeholders, authorities and industry partners - whether it is out of professional interest or personal concern.

REVIEW 7. RARE DISEASE SYMPOSIUM

Early Detection and Treatment - The Role of Prevention in Rare Diseases

The role of prevention in the field of rare diseases was the focus of the 7th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation. Together with around 150 participants, the possibilities and limits of prevention in the field of rare diseases were examined from a medical, ethical and social perspective.

Early Detection and Treatment - The Role of Prevention in Rare Diseases

Detect early to be able to act in the best possible way - the 7th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation will take place on June 9/10, 2023. Together we would like to discuss possibilities and limits of prevention in the field of rare diseases from a medical, ethical and social perspective.

Review 6th Rare Disease Symposium

Translational medicine for rare diseases - from buzzword to reality

How does basic scientific knowledge become medical progress? What is necessary for patients to benefit quickly from research results? The Eva Luise and Horst Köhler Foundation for People with Rare Diseases invited participants to the 6th Rare Disease Symposium in Berlin on June 13 and 14, 2022, to discuss these and other questions related to translational medicine.

INTERVIEW SERIES: TRANSLATE-NAMSE

A short talk with...

... mit Dr. med. Christine Mundlos, stellvertretende Geschäftsführerin von ACHSE e.V. Die medizinische Versorgung von Menschen mit Seltenen Erkrankungen verbessern: Mit diesem Ziel hat das Verbundprojekt TRANSLATE-NAMSE in den vergangenen drei Jahren Maßnahmen entwickelt und erfolgreich umgesetzt. Hier schildern Projektverantwortliche von TRANSLATE-NAMSE ihre Erfahrungen und Erwartungen.

INTERVIEW SERIES: TRANSLATE-NAMSE

A short talk with...

... Prof. Dr. Annette Grüters Kieslich, Vorstandsvorsitzende der Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen Die medizinische Versorgung von Menschen mit Seltenen Erkrankungen verbessern: Mit diesem Ziel hat das Verbundprojekt TRANSLATE-NAMSE in den vergangenen drei Jahren Maßnahmen entwickelt und erfolgreich umgesetzt. Hier schildern Projektverantwortliche von TRANSLATE-NAMSE ihre Erfahrungen und Erwartungen.

6. Rare Disease Symposium