Solidarity with 
the orphans of medicine

Every person has the same right to health. That is why the Eva Luise and Horst Köhler Foundation has been working since 2006 to improve medical care for people with rare diseases through targeted research funding and networking.
When the idea for this commitment was born more than 15 years ago, we knew many things from our own experience:
  • die verzweifelte Suche nach Antworten
  • die jahrelange Odyssee von Klinik zu Klinik
  • die Hilflosigkeit angesichts fehlender Behandlungsoptionen
The fact that a lot has developed in the right direction since then encourages us in our work, but there is still much to be done: In addition to the further expansion of specialized care structures, the orphans of medicine now need, above all, a bold research offensive in order to participate in the immense possibilities of modern medicine.

Medical progress is on our side. Let us work together to ensure that people with diseases that have not yet been adequately researched can also hope for the medicine of tomorrow!

Shaping the future together that is our commitment. That is our promise.
Shaping the future together
Egal, ob Kind oder erwachsen — niemand sollte sich mit einer ernsten, oft chronischen und lebensverkürzenden Erkrankung allein gelassen fühlen. Dennoch gibt es derzeit für Menschen mit einer Seltenen Erkrankung häufig keine ausreichenden Therapiemöglichkeiten. Das wollen wir ändern!

The Eva Luise and Horst Köhler Foundation therefore focuses on three major challenges:
Grafik Lupe und DNA
The use of powerful genetic and molecular diagnostic methods can often reveal the causes of diseases. We are committed to making this the gold standard for patients without a confirmed diagnosis - so that targeted treatment can begin in good time.
Grafische Darstellung Tabletten und Spritze
For the vast majority of rare diseases, there are currently no effective treatment options. We therefore support research into disease mechanisms and the rapid translation of promising therapeutic approaches - so that patients with rare diseases can hope for specific and effective drugs.
Grafische Darstellung Infrastruktur
People with rare diseases often experience a years-long, stressful odyssey in their search for adequate medical treatment. We support the development of an integrated research and care network for rare diseases – to help these patients faster and better.
Family Köhler
Reliable partner of people with rare diseases
The Köhlers have many connections to rare diseases, including personal ones. Eva Luise Köhler held various honorary positions during her husband Prof. Dr. Horst Köhler's term as President of the Federal Republic of Germany from 2004 to 2010.

Among other things, the former passionate teacher is patron of the Alliance of Chronic Rare Diseases (ACHSE e.V.). In many encounters, Eva Luise Köhler has experienced what it means for people when they are affected by a rare disease – the worries and despair that arise when the newborn child, the partner, the wife or the best friend gets ill and a stressful odyssey from clinic to clinic begins in search of answers.

But Eva Luise Köhler has also experienced what it means when a diagnosis is finally found, when there is hope for relief and sometimes even for a cure. Based on these experiences, the Köhlers decided to actively promote research in the field of rare diseases themselves. In March 2006, they therefore initiated the establishment of the Eva Luise and Horst Köhler Foundation for People with Rare Diseases. From the beginning, their daughter Ulrike Kristina Köhler has also been involved in the foundation's advisory board for the interests of people with rare diseases.

Eva Luise and former Federal President Horst Köhler live in Berlin and the Chiemgau. Region. They have been married since 1969 and have two grown-up children and four grandchildren.
Offizielles Foto des Ehepaars Köhler während der Amtszeit des Bundespräsidenten.
Official photo of the Köhlers during the term of office of the Federal President. Photo: Office of the Federal President
... it takes an average of 5 years for patients with rare diseases to receive a correct diagnosis?

Help the 
orphans of medicine!

Donation account
Eva Luise and Horst Köhler Foundation for
People with Rare Diseases
Sparkasse KölnBonn
IBAN DE83 3705 0198 1901 4480 17
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