News

STELLUNGNAHME ZUM ECKPUNKTEPAPIER

Krankenhausreform: Seltene Erkrankungen nicht vergessen!

Am 10. Juli 2023 haben sich Bund und Länder auf die Eckpunkte für die Krankenhausreform geeinigt. In diesem Zusammenhang appelliert die Eva Luise und Horst Köhler Stiftung an die politisch Verantwortlichen: Menschen mit Seltenen Erkrankungen dürfen nicht vergessen werden!

Film portrait Nicole Schlautmann

How innovative drugs for rare diseases are developed

"Thank you for my life!" The man who says this to Nicole Schlautmann should, statistically speaking, already be dead. The fact that he can still report on his health progress is largely due to an innovative drug that was developed shortly before. It is moments like this that drive the biology graduate. Today, she holds an executive position at the international pharmaceutical company Pfizer, where she contributes her passion for the "rare" as Managing Director in Austria.

Filmporträt Prof. Dr. Christopher Baum

How does knowledge come into effect?

"We take care of the process of how knowledge comes into effect," says Christopher Baum, summarizing the mission of the Berlin Institute of Health (BIH). In order to bring new findings quickly into application, he says, it is essential to "go beyond the boundaries of one's own laboratory." Well-coordinated collaboration allows necessary steps to be worked through in parallel. Baum is convinced that this can shorten the development of new therapies by years. This is why it is not possible without broad alliances that also bring industry on board in good time.

Filmporträt Familie Kiefer

Diagnosis NEDAMSS: When children irrecoverably forget what they have learned

Johnny is just one year old when he and his parents are diagnosed with NEDAMSS (NEurodevelopmental Disorder with regression, Abnormal Movements, loss of Speech, and Seizure). There are only 21 affected children worldwide at this time. Without treatment options, the very rare disease will gradually take away everything Johnny has learned up to this point.

Research Award

Call for applications for the 16th Eva Luise Köhler Research Award for Rare Diseases

In order to improve medical care for the "orphans of medicine", the Eva Luise and Horst Köhler Foundation in cooperation with ACHSE e. V. has been granting a research award for rare diseases since 2008. Applications for the 16th research award, which will be awarded in Berlin in May 2024, can be submitted until September 17, 2023.

15. Eva Luise Köhler Research Award

"A truly strong team" - Eva Luise Köhler honors Tübingen brain researcher and parents' initiative

In a festive award ceremony, Eva Luise Köhler presented the 15th Eva Luise Köhler Research Award for Rare Diseases to Dr. Simone Mayer, a molecular biologist from Tübingen, and Dr. Axel Lankenau and Dr. Julia Matilainen from the self-help association PCH-Familie.

1 2 3 … 7 Next »

Horst Köhler auf dem Display einer Sony Kamera

Alliance4Rare

gemeinsam Zukunft schaffen

Film project by Britta Wauer

Showing face for more research on rare diseases

In the midst of the pandemic, filmmaker Britta Wauer portrayed companions and supporters of our foundation's work. In twelve episodes, the Grimme Award winner explores what drives people who work in research and science, in treatment rooms, meeting rooms or at their desks at home to ensure that (their) children with rare diseases can hope for urgently needed therapies.

Zur Filmübersicht

Research Award

15.06.2023

Call for applications for the 16th Eva Luise Köhler Research Award for Rare Diseases

15. Eva Luise Köhler Research Award

15.06.2023

"A truly strong team" - Eva Luise Köhler honors Tübingen brain researcher and parents' initiative

13.03.2023

Ceremony of the 15th Eva Luise Köhler Research Award for Rare Diseases

Eva Luise Köhler wird am Freitag, 9. Juni 2023 ab 17 Uhr in der Berlin-Brandenburgischen Akademie der Wissenschaften den nach ihr benannten Forschungspreis für Seltene Erkrankungen verleihen. Die Anmeldung ist ab sofort möglich.

14. Eva Luise Köhler Research Award

13.06.2022

Cystic fibrosis research - Eva Luise Köhler honors scientists from Münster and Regensburg

In a festive award ceremony, Eva Luise Köhler honored Professor Dr. Thorsten Marquardt and Dr. Julien Park from Münster University Hospital and Professor Dr. Karl Kunzelmann from the University of Regensburg with the 14th Eva Luise Köhler Research Award for Rare Diseases for a promising repurposing approach for the treatment of cystic fibrosis.

RESEARCH AWARD 2021

10.02.2021

„From ultra rare to rare“: very rare disease points the way for cystic fibrosis therapy

[…]

RESEARCH AWARD 2020

13.02.2020

When muscles turn into bones

[…]

1 2 Next »