ALLIANCE4RARE: CLINICIAN SCIENTISTS IN PORTRAIT Dr. Nina-Christine Knopf, Gustav-Carus Universitätsklinik Dresden

In order to provide research-based pediatricians with the necessary freedom for high-level scientific work during their qualification, the research network Alliance4Rare, initiated by the Eva Luise and Horst Köhler Foundation, focuses among other things on structured clinician scientist programs. Some of the fellows who have recently started their work introduce themselves and their projects.

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RESEARCH AWARD 2009 - UPDATE Vulnerable as a butterfly - New drugs against epidermis bullosa

The Eva Luise Köhler Research Award has been granted annually since 2008 to promote research into rare diseases. The awarded money of €50,000 each has already enabled more than a dozen innovative research projects to be launched. The 2009 award winner, Prof. Dr. Leena Bruckner-Tuderman told journalist Sandra Arens how her research in the field of epidermis bullosa has developed since the 2009 award.

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INTERVIEW "There is a lack of role models and research funding"

In an interview with 'themenbote medizin', Sanna Börgel, Managing Director of Alliance4Rare gGmbH, introduces the initiative of the Eva Luise and Horst Köhler Foundation and explains how the civil society alliance intends to launch a visionary care and research network for rare diseases and thus advance the development of modern therapeutic approaches.

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RESEARCH AWARD 2008 - UPDATE Overcoming boundaries and saving lives with the "turbo enzyme" 

The Eva Luise Köhler Research Award has been granted annually since 2008 to promote research into rare diseases.
The awarded money of €50,000 each has already enabled more than a dozen innovative research projects to be launched. Journalist Sandra Arens asked the first award winners, Prof. Dr. Volkmar Gieselmann and Prof. Dr. Hans-Joachim Galla, how their research on lysosomal storage disorders has developed since they received the award in 2008.

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ALLIANCE4RARE: CLINICIAN SCIENTISTS IN PORTRAIT Dr. Felix Boschann, Charité Universitätsmedizin

In order to provide research-based pediatricians with the necessary freedom for high-level scientific work during their qualification, the research network Alliance4Rare, initiated by the Eva Luise and Horst Köhler Foundation, focuses among other things on structured clinician scientist programs. Some of the fellows who have recently started their work introduce themselves and their projects.

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Online survey until October 31 Study: Rare diseases during the pandemic

How did people with rare diseases fare during the Corona pandemic? An online survey as part of the "RESILIENT-SE-PAN" project funded by the Eva Luise and Horst Köhler Foundation aims to uncover gaps in care and identify pointers for improving care. You are cordially invited to participate!

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