Film project by Britta Wauer
Showing face for more research on rare diseases
In the midst of the pandemic, filmmaker Britta Wauer portrayed companions and supporters of our foundation's work. In twelve episodes, the Grimme Award winner explores what drives people who work in research and science, in treatment rooms, meeting rooms or at their desks at home to ensure that (their) children with rare diseases can hope for urgently needed therapies.
Zur Filmübersicht
INTERVIEW SERIES: TRANSLATE-NAMSE A short talk with...

... mit Prof. Dr. Heiko Krude, Konsortialleiter TRANSLATE-NAMSE

Improving the medical care of people with rare diseases: With this goal in mind, the TRANSLATE-NAMSE joint project has developed and successfully implemented measures over the past three years. Here, those responsible for the TRANSLATE-NAMSE project describe their experiences and expectations.

Read more
INTERVIEW SERIES: TRANSLATE-NAMSE A short talk with...

... mit Prof. Dr. Corinna Grasemann, Katholisches Klinikum Bochum

Improving the medical care of people with rare diseases: With this goal in mind, the TRANSLATE-NAMSE joint project has developed and successfully implemented measures over the past three years. Here, those responsible for the TRANSLATE-NAMSE project describe their experiences and expectations.

Read more
INTERVIEW SERIES: TRANSLATE-NAMSE A short talk with...

... mit Prof. Dr. Olaf Rieß, Direktor des Tübinger Instituts für Medizinische Genetik und Angewandte Genomik

Improving the medical care of people with rare diseases: With this goal in mind, the TRANSLATE-NAMSE joint project has developed and successfully implemented measures over the past three years. Here, those responsible for the TRANSLATE-NAMSE project describe their experiences and expectations.

Read more
INTERVIEW SERIES: TRANSLATE-NAMSE A short talk with...

... mit Dr. med. Christine Mundlos, stellvertretende Geschäftsführerin von ACHSE e.V.

Improving the medical care of people with rare diseases: With this goal in mind, the TRANSLATE-NAMSE joint project has developed and successfully implemented measures over the past three years. Here, those responsible for the TRANSLATE-NAMSE project describe their experiences and expectations.

Read more
INTERVIEW SERIES: TRANSLATE-NAMSE A short talk with...

... Prof. Dr. Annette Grüters Kieslich, Vorstandsvorsitzende der Eva Luise und Horst Köhler Stiftung für Menschen mit Seltenen Erkrankungen

Improving the medical care of people with rare diseases: With this goal in mind, the TRANSLATE-NAMSE joint project has developed and successfully implemented measures over the past three years. Here, those responsible for the TRANSLATE-NAMSE project describe their experiences and expectations.

Read more
Versorgungsforschung Innovationsausschuss beim G-BA empfiehlt TRANSLATE-NAMSE für die Regelversorgung

4. April 2022. Nach Evaluation der Projektergebnisse von TRANSLATE-NAMSE kam der Innovationsausschuss beim Gemeinsamen Bundesausschuss (G-BA) diese Woche zu einer klaren Empfehlung: Die während der dreijährigen Projektlaufzeit erfolgreich erprobten Ansätze für eine bessere gesundheitliche Versorgung von Patientinnen und Patienten mit Seltenen Erkrankungen sollen in die Regelversorgung überführt werden.  Überzeugen konnte die standortübergreifende Zusammenarbeit der Konsortialpartner insbesondere […]

Read more
Newsletter subscription
Our free newsletter informs you about current calls for proposals, events and projects on rare diseases.
linkedin facebook pinterest youtube rss twitter instagram facebook-blank rss-blank linkedin-blank pinterest youtube twitter instagram