Film project by Britta Wauer
Showing face for more research on rare diseases
In the midst of the pandemic, filmmaker Britta Wauer portrayed companions and supporters of our foundation's work. In twelve episodes, the Grimme Award winner explores what drives people who work in research and science, in treatment rooms, meeting rooms or at their desks at home to ensure that (their) children with rare diseases can hope for urgently needed therapies.
Zur Filmübersicht
Alliance4Rare Research and medical care are inseparable for rare diseases

In an interview with Themenbote Medizin, Professor Dr. Annette Grüters-Kieslich, Chairwoman of the Foundation's Board of Directors, introduces the Alliance4Rare research initiative. She explains what the alliance is all about, where its focus lies and how researching pediatricians are specifically supported.

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INTERVIEW "There is a lack of role models and research funding"

In an interview with 'themenbote medizin', Sanna Börgel, Managing Director of Alliance4Rare gGmbH, introduces the initiative of the Eva Luise and Horst Köhler Foundation and explains how the civil society alliance intends to launch a visionary care and research network for rare diseases and thus advance the development of modern therapeutic approaches.

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INTERVIEW "We learn a lot from 'the rare' for the treatment of common diseases. Everyone benefits from this!"

In the BPI Publication "Themendienst" about Rare Diseases, Prof. Dr. Annette Grüters-Kieslich describes challenges for people with rare diseases and points out approaches for improvements. And she emphasizes: "We learn a lot from the rare diseases for the treatment of common diseases. Everyone benefits from this!"

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INTERVIEW SERIES: TRANSLATE-NAMSE A short talk with...

... Gabriele Müller, Center for Evidence-Based Health Care Dresden

Improving the medical care of people with rare diseases: With this goal in mind, the TRANSLATE-NAMSE joint project has developed and successfully implemented measures over the past three years. Here, those responsible for the TRANSLATE-NAMSE project describe their experiences and expectations.

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INTERVIEW SERIES: TRANSLATE-NAMSE A short talk with...

... mit Prof. Dr. Heiko Krude, Konsortialleiter TRANSLATE-NAMSE

Improving the medical care of people with rare diseases: With this goal in mind, the TRANSLATE-NAMSE joint project has developed and successfully implemented measures over the past three years. Here, those responsible for the TRANSLATE-NAMSE project describe their experiences and expectations.

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INTERVIEW SERIES: TRANSLATE-NAMSE A short talk with...

... mit Prof. Dr. Corinna Grasemann, Katholisches Klinikum Bochum

Improving the medical care of people with rare diseases: With this goal in mind, the TRANSLATE-NAMSE joint project has developed and successfully implemented measures over the past three years. Here, those responsible for the TRANSLATE-NAMSE project describe their experiences and expectations.

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