Film project by Britta Wauer
Showing face for more research on rare diseases
In the midst of the pandemic, filmmaker Britta Wauer portrayed companions and supporters of our foundation's work. In twelve episodes, the Grimme Award winner explores what drives people who work in research and science, in treatment rooms, meeting rooms or at their desks at home to ensure that (their) children with rare diseases can hope for urgently needed therapies.
Zur Filmübersicht
Alliance4Rare Research and medical care are inseparable for rare diseases

In an interview with Themenbote Medizin, Professor Dr. Annette Grüters-Kieslich, Chairwoman of the Foundation's Board of Directors, introduces the Alliance4Rare research initiative. She explains what the alliance is all about, where its focus lies and how researching pediatricians are specifically supported.

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Article Who is doing research for the orphans of medicine? "Far too few!" - Eva Luise Köhler in +3 Magazine

Who is doing research for the orphans of medicine? "Far too few!" is the answer given by Eva Luise Köhler in the current +3 Magazine, a supplement of the Süddeutsche Zeitung. For fatally, the immense need for effective medical help in the field of rare diseases has long been matched by a lack of research activities.

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Article Prof. Dr. Annette Grüters Kieslich: Why rare diseases affect us all

"Why rare diseases affect us all", explains the chairwoman of the Eva Luise and Horst Köhler Foundation for People with Rare Diseases, in the current publishing special "Rare Diseases" of the Frankfurter Allgemeine Zeitung. One thing is clear: Rare is not insignificant!

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Article "Flying blind" - article by Eva Luise Köhler in the STERN supplement "Rare diseases"

In the current STERN supplement, Eva Luise Köhler emphasizes the importance of medical registries in the field of rare diseases

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Rare diseases Bavaria "Rare disease patients are not alone!"

Unter der Schirmherrschaft von Eva Luise Köhler fiel am 8. Dezember 2022 in Freising der Startschuss für die Kampagne „Seltene Erkrankungen Bayern“. Ziel der von MdB Erich Irlstorfer angestoßenen Initiative ist, mit vielen verschiedenen Aktionen und Veranstaltungen im Jahr 2023 den Seltenen Erkrankungen Gehör zu verschaffen und auf die Situation der Betroffenen aufmerksam zu machen.

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Augsburg Rare Disease Day "There are some who are in darkness And the others are in light..."

At the "Rare Disease Day" of the Augsburg Center for Rare Diseases, Eva Luise Köhler thanked the team around Dr. Desirée Dunstheimer for their dedicated work and appealed to the guests in the hall: "Let's continue to fight together for the interests of the rare!"

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