Film project by Britta Wauer
Showing face for more research on rare diseases
In the midst of the pandemic, filmmaker Britta Wauer portrayed companions and supporters of our foundation's work. In twelve episodes, the Grimme Award winner explores what drives people who work in research and science, in treatment rooms, meeting rooms or at their desks at home to ensure that (their) children with rare diseases can hope for urgently needed therapies.
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ONLINE SURVEY Rare Barometer: Should screening for rare diseases at birth be standard practice?

The current Rare Barometer survey is online: As part of the Screen4Care research project, opinions of patients and family members are requested on the topic of newborn screening for rare diseases. Take part now!

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