BEWERBUNG BIS 30. SEPTEMBER Alliance4Rare: Current Call for proposals

Current call for proposals: The Alliance4Rare, an initiative of the Eva Luise and Horst Köhler Foundation for People with Rare Diseases, funds research projects on rare diseases in three program lines. A central element of the projects should be the development of targeted therapeutic approaches for rare diseases with a childhood manifestation. The application period runs until September 30, 2022.

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Research Award 15th Eva Luise Köhler Research Award for Rare Diseases

In order to improve medical care for the "orphans of medicine", the Eva Luise and Horst Köhler Foundation in cooperation with ACHSE e. V. has been offering a research award for rare diseases since 2008. Applications for the 15th research prize, which will be awarded in Berlin in June 2023, could be submitted until September 4, 2022.

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Greeting and appeal Rare must not be equated with insignificant!

In her welcoming address at the Tagesspiegel Patient Dialogue Forum, Eva Luise Köhler emphasized the great importance of rapid diagnosis for patients with rare diseases and stressed the need for digitization and consolidation of data for precision medicine.

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NATIONAL REGISTER FOR RARE DISEASES - NARSE "A decision with foresight"

The Innovation Committee at the Federal Joint Committee (G-BA) is funding the FAIR4Rare project as one of 32 new projects in the field of health services research. It supports the accompanying evaluation of the development process for an open National Registry for Rare Diseases (NARSE). 

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Review 6th Rare Disease Symposium Translational medicine for rare diseases - from buzzword to reality

How does basic scientific knowledge become medical progress? What is necessary for patients to benefit quickly from research results? The Eva Luise and Horst Köhler Foundation for People with Rare Diseases invited participants to the 6th Rare Disease Symposium in Berlin on June 13 and 14, 2022, to discuss these and other questions related to translational medicine.

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14. Eva Luise Köhler Research Award Cystic fibrosis research - Eva Luise Köhler honors scientists from Münster and Regensburg

In a festive award ceremony, Eva Luise Köhler honored Professor Dr. Thorsten Marquardt and Dr. Julien Park from Münster University Hospital and Professor Dr. Karl Kunzelmann from the University of Regensburg with the 14th Eva Luise Köhler Research Award for Rare Diseases for a promising repurposing approach for the treatment of cystic fibrosis.

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